Making
Sense Out of Bioethics
Facing Death in Solidarity and Hope

When
I make presentations on end-of-life decision
making, I sometimes have audience members
approach me afterwards with comments like,
“You know, Father, when my mom died six
years ago, and I look back on it, I’m not
sure my brothers and I made the right
decisions about her care.” Remarks like
these serve to remind us how the
circumstances surrounding death are
important not only for the person who passes
on but also for those who remain behind.
A
“good death” generally involves the
confluence of many elements and events:
dying surrounded by our loved ones,
preferably in surroundings like a home or
hospice setting; receiving proper pain
management; making use of reasonable medical
treatments (and avoiding unduly burdensome
treatments); making peace with family and
friends; making peace with God (and
receiving the last sacraments); and uniting
ourselves with Christ in his hour of
suffering.
As
we take care of those who are sick and
suffering, we face the dual challenge of
making ethical treatment decisions for them
and ensuring a supportive and humanly
enriching environment as they approach their
last days and hours.
By
providing a supportive and nurturing
environment for those who are dying, we aid
them in powerful ways to overcome their
sense of isolation. Sister Diana Bader, O.P.
has perceptively described this modern
health care challenge:
“In
the past, death was a community event. Those
closest to the patient ministered in a
variety of ways: watching and praying with
the patient, listening and talking, laughing
and weeping. In solidarity, a close
community bore the painful experience
together. Today, because of the
medicalization of the healthcare setting,
death is more often regarded as a failure of
medical science. The dying find themselves
isolated from human warmth and compassion in
institutions, cut off from access to human
presence by technology which dominates the
institutional setting in which most deaths
occur.”
Fostering
a humanly enriching environment for those
facing death often means giving explicit
attention to human presence and human
contact, even in the midst of a plethora of
technology that may surround a patient.
For
example, thanks to the remarkable
development of feeding tubes, it has become
a relatively simple matter to nourish and
hydrate someone who is having trouble
swallowing. Such a tube, particularly when
inserted directly into the stomach, is a
highly effective means of providing
nutrition and hydration in various
institutional settings. But the ease of
injecting food and liquids through a
so-called PEG tube into the stomach means
that medical staff can quickly and
efficiently move on to the next patient
after a feeding, perhaps neglecting to meet
the very real human need for companionship.
Staff members may prefer the efficiency that
such a tube affords, but human contact may
be diminished in the process.
If
a patient is still able to take small
amounts of food orally, it may be preferable
to feed him or her by hand, rather than
relying on a feeding tube. The rich human
contact that occurs whenever one person
devotes time, energy and love to hand-feed
another should not become a casualty to our
efforts to streamline medicine or to save
money. This focused effort on our part to be
present to those who are dying maintains
human solidarity with them, it affirms their
dignity as persons, it manifests benevolence
towards them, and it maintains the bond of
human communication with them. It also goes
a long way towards helping to overcome their
sense of loneliness and their fear of
abandonment.
When
we show compassion towards others in their
suffering, we do far more than express a
detached pity towards them. Rather, we
manifest a willingness to enter into their
situation. The word compassion (from Latin and French roots: com - “with” + pati -
“to suffer”) means, “to suffer
with,” to suffer alongside, to participate
in suffering. Pope Benedict XVI perhaps
stated the importance of compassion most
directly in 2007 when he wrote, “A society
unable to accept its suffering members and
incapable of helping to share their
suffering and to bear it inwardly through
“com-passion” is a cruel and inhuman
society. … Indeed, to accept the
‘other’ who suffers, means that I take
up his suffering in such a way that it
becomes mine also. … The Latin word con-solatio, ‘consolation,’ expresses this beautifully. It
suggests being
with the other in his solitude, so that
it ceases to be solitude.”
We
suffer alongside our loved ones, aware of
the abiding inner truth that a part of
ourselves suffers and dies whenever another
who is near to us suffers and dies. Our
communion with them in our shared humanity,
and our dedicated solidarity in suffering
invariably leads us, and those who pass on
ahead of us, to share in the mysterious and
enduring graces of a good death.
Rev.
Tadeusz Pacholczyk, Ph.D. earned his
doctorate in neuroscience from Yale and did
post-doctoral work at Harvard. He is a
priest of the diocese of
Fall River
,
MA
, and serves as the Director of Education at
The
National
Catholic
Bioethics
Center
in
Philadelphia
. See www.ncbcenter.org